Welcome to the PWSA (UK) website
Welcome to the PWSA (UK) website
We are a registered charity (no. 284583), and the only organisation in the UK which is dedicated to supporting people with Prader-Willi syndrome (PWS),their families, carers, and the professionals who work with them.
Prader-Willi syndrome is a complex genetic disorder, which is present from birth. Its main characteristics are:
- excessive appetite
- low muscle tone
- emotional instability
- immature physical development
- learning disabilities (sometimes very mild)
On this site you will find information about PWS and how we can help. If you require in-depth information, please complete our free registration form to access other levels of the site.
- Discussion forum and community forum have merged
- Family Days Out this summer
- Questionnaire on skinpicking and PWS
- The Mental Capacity Act and its significance for the support of people with PWS - updated and expanded
- Volunteers required for research into mental health and PWS
- Research into behaviour in PWS
- Scenarios from various life stages in PWS with management suggestions
- The importance of epigenetics in PWS
- Helping the infant with PWS with early feeding difficulties
- Volunteers with Uniparent Disomy (UPD) required urgently for research
